Secondary Research on Cystic Fibrosis:
- CF has no cure
- CF is an inherited disease of your secretory glands, including your mucus and sweat glands. CF mostly affects the lungs, pancreas, liver, intestines, sinuses, and sex organs. It doesn't affect the brain.
- CF was once always fatal in childhood. Better treatment methods developed over the past 20 years have increased the average lifespan of CF patients to nearly 30 years.
- Abut 1,000 new case of CF are diagnosed each year.
- The predicted median age of survival for a person with CF is in the early 40's.
- Their music becomes thick and sticky. It builds up in your lungs and blocks your airways, which leads to repeated, serious lung infections that can damage your lungs.
- Each week 5 babies are born with CF, and 2 people die.
- A feeling of uncertainty and a lack of control over certain aspects of their own life can lead to teenagers with cystic fibrosis to experience anxiety, insecurity and depression.
- The forecasted life expectancy of baby's born today is 40 years old. Infants who have normal pancreas function are expects to live past 50 years old.
- If 2 people carry the gene, with every pregnancy there is a one in 4 chance that the child will have Cf. There is a 2 in 4 chance that the child will not have CF but will carry the gene and a one in 4 chance that the child will not have CF and not be a carrier.
- In the 1980's life expectancy of people with cystic fibrosis was 14 years.
Treatment options include: bronchodilators – which are a type of medication that helps expand the airways inside the lungs making it easier to breathe. Antibiotics – to treat chest and lung infections. Physiotherapy – there are a range of exercises that can help clear mucus from the lungs.
Findings:
http://www.cff.org/aboutcf/
http://www.healingwell.com/library/cysticfibrosis/info2.asp
http://www.nhlbi.nih.gov/health//dci/Diseases/cf/cf_summary.html
http://kidshealth.org/kid/health_problems/heart/cystic_fibrosis.html
http://www.mydr.com.au/respiratory-health/cystic-fibrosis-fast-facts
http://www.disabled-world.com/health/respiratory/cystic-fibrosis/life-expectancy.php
http://www.nhs.uk/conditions/cystic-fibrosis/Pages/Introduction.aspx
Primary Research:
Archives on Cystic Fibrosis:
http://www.healingwell.com/library/cysticfibrosis/info2.asp
http://www.nhlbi.nih.gov/health//dci/Diseases/cf/cf_summary.html
http://kidshealth.org/kid/health_problems/heart/cystic_fibrosis.html
http://www.mydr.com.au/respiratory-health/cystic-fibrosis-fast-facts
http://www.disabled-world.com/health/respiratory/cystic-fibrosis/life-expectancy.php
http://www.nhs.uk/conditions/cystic-fibrosis/Pages/Introduction.aspx
Primary Research:
This questionnaire on documentaries suggests that 12 out of 13 younger people (18 or younger) which completed my questionnaire would watch a 3 Minute Wonder on my chosen topic, cystic fibrosis. Also, an average of 60% of the participants enjoyed watching human stories, which is the genre I have chosen to present my chosen topic. These results have therefore helped me to continue with my initial idea and genre.
Archives on Cystic Fibrosis:
More Children Under 12 to be Considered for Adult Lung Transplants -
http://pulmccm.org/main/2013/cystic-fibrosis-review/children-to-be-considered-for-adult-lung-transplants-in-policy-change/
Human Genome Editing Could Help Eliminate Diseases Like CF -
http://www.rtmagazine.com/2014/02/human-genome-editing-cf/
New Cystic Fibrosis Medication -
http://www.rtmagazine.com/2013/03/new-cystic-fibrosis-medications-2/
New Treatment -
http://www.futurity.org/to-treat-cystic-fibrosis-drug-mimics-hiv/
Sweat Test May Lead to Better Cystic Fibrosis Therapy -
http://www.futurity.org/precise-sweat-test-lead-new-cystic-fibrosis-treatments/
Documentaries:
Human Genome Editing Could Help Eliminate Diseases Like CF -
http://www.rtmagazine.com/2014/02/human-genome-editing-cf/
New Cystic Fibrosis Medication -
http://www.rtmagazine.com/2013/03/new-cystic-fibrosis-medications-2/
New Treatment -
http://www.futurity.org/to-treat-cystic-fibrosis-drug-mimics-hiv/
Sweat Test May Lead to Better Cystic Fibrosis Therapy -
http://www.futurity.org/precise-sweat-test-lead-new-cystic-fibrosis-treatments/
Documentaries:
Stories:
Costs and Arranging Interviews:
There will be no costs made to travel to the locations which are needed to film my documentary due to having a bus pass if needed. This can be used to travel to the patients house, which in fact is walking distance therefore may not be needed. There will also be no costs needed to travel to Norfolk and Norwich University Hospital to interview a nurse which looks after the patient as I will be able to travel with the patients mother on her visits.
Laws:
The currents laws in the UK on filming in public is to get permission from the local authority and police when filming in public. You will also need to inform the police when using props for special effects such as explosives (Filming in Public Spaces, 2014). You also need permission to film children in public which are under 18 from their parent or guardian.
"Libel is defined as defamation by written or printed words, pictures, or in any form other than by spoken words or gestures." (Defamation, 2014). Defamation can become a problem in productions if the product affects or hurts someones reputation, which can go to the extremes of affecting someones career in the filming/television industry. This will not need to be considered in my documentary as the topic which I have chosen is extremely serious and should not affect any of the individuals reputations which are shown.
The Ofcom Broadcasting Code is split up into 10 sections which consists of; protecting the under-eighteens, harm and offence, crime, religion, due impartiality and due accuracy and undue prominence of views and opinions, elections and referendums, fairness, privacy, commercial references in television programming, and commercial communications in radio programming. There are slight elements of my documentary which may risk infringement of the Ofcom Broadcasting code such as "Programmes such as dramas and factually-based dramas should not portray facts, events, individuals or organisations in a way which is unfair to an individual or organisation." (Section Seven: Fairness, 2014). This is due to the facts which I will be presenting my audience is from various websites, therefore I do not have complete proof that all this information is accurate. This is seen on the viewer trust guidlines of Channel 4, "Your programme must be truthful, accurate and fair." (Viewer Trust Guidelines, 2014) which is something which I cannot ensure, although the information given from experts can be ensured to be the completely accurate.
References:
Filming in Public Spaces (2014) available at: http://industry.bfi.org.uk/publicspaces [accessed on: 12/03/14]
Defamation (2014) available at: http://en.wikipedia.org/wiki/Defamation [accessed on: 13/03/14]
Ofcom Section Seven: Fairness (2014) available at: http://stakeholders.ofcom.org.uk/broadcasting/broadcast-codes/broadcast-code/fairness/ [accessed on: 14/03/14]
Viewer Trust Guidelines (2014) available at: http://www.channel4.com/producers-handbook/c4-guidelines/viewer-trust-guidelines [accessed on: 14/03/14]
Alycia,
ReplyDeleteYou have used a range of sources and put a lot of effort into this post. Your work is detailed and well-presented. Combined with your pre-production, I have awarded a distinction for the relevant grading criteria.
EllieB